Tag Archive | beautiful

Eye see you…

Let’s talk about the connection between Epidermal Nevus and ocular abnormalities. Right out of the gate I  want to clarify that a diagnosis of Epidermal Nevus in any form without one or more of the potential abnormalities is the disease itself. To be classified as having the syndrome you must have additional abnormalities. Additionally, there are different types of syndromes depending on what form of epidermal nevus one has and what abnormalities are present. This has caused a lot of confusion and controversy in the medical world. I see the term used interchangeably all the time, causing additional anxiety but have clarified with multiple physicians that the absence of any abnormalities does not classify as the syndrome. I for one, am the first person to recognize that the diagnosis itself carries enough anxiety provoking elements and issues without any abnormalities that making sure I understood the difference was vital.

It is also important to remember that the sydromes are rare and chances increase with wide spread lesions.

Ocular abnormalities may include Colobomas of the pupil, iris or eyelid and Cataracts.

A coloboma is a hole in one of the structures of the eye, such as the iris, retina, choroid, or optic disc. The hole is present from birth and can be caused when a gap called the choroid fissure, which is present during early stages of prenatal development, fails to close up completely before a child is born.

Colobomas are sometimes referred to as keyholes due to their shape. They can effect one or both eyes.

coloboma

There can also be an association with colobomas of the eyelid. This would be the result of incomplete cell migration and present at birth.

Coloboma-243px

A cataract is a clouding of the lens of the eye that can make it harder for you to see. Cataracts happen when protein builds up in the lens of your eye, making it cloudy. This prevents light from passing clearly through the lens, causing some loss of vision. There are many causes including, age related, from trauma, congenital – meaning born with it, or secondary – which can be due to other medical conditions.

cataract

I have searched and searched and cannot seem to find a solid answer to whether or not cataracts would be present at birth only or can develop at a later age but I have an upcoming appointment and will be sure to ask.

Oregon Health and Science University told us that it is recommended to have eyes of nevus owners checked by age one. Where some of the abnormalities would be obvious to the naked eye, others are not.

I downloaded a pediatric neurology book that speaks in more detail about the syndromes and hope to find more valuable information to share soon.

To all our new followers and newly diagnosed nevus owners we hope you find this useful!

Thanks for walking with us today,

Mermaid’s Mommy

 

 

 

Did “It Work?”

1/3/16 – 1/17/16

Well, our 2 weeks is up and it’s time for results…

Remember we trialed the “It Works” exfoliating peel. We used this product two times a week, for two weeks, on Mermaid’s largest nevus area beneath her arm. During this time we stopped all other treatments; including lotions and soaps.

face-peel-4

Mermaid’s disease thickens, in time it is almost inevitable that it will become warty to the point that we will not be able to manage it with home care and that’s when surgery comes into play, if she chooses, or if it effects her joints on her hands. Over time you can see below that it begins to thicken. Even with moisturizers, this will happen. My hope with the exfoliating peel was that we could flatten the thicker areas and help prevent some of her “picking” and itching. Hydration is the most important factor in lessening the itch but the thicker it becomes the more painful it becomes.

Here’s where we started….

Day 1.

untitled

and ended….

I am happy to share that yes, the exfoliating peel did just what it was suppose too.

Day 14.

2016-01-24 10.22.41

Let’s take a closer look side by side…

MyCollage_45

MyCollage_44

To be honest I took NO pictures along the way and paid little attention to the effects aside form making sure Mermaid was not having any kind of negative reaction to the product. I am so pleasantly surprised to see the side by side this morning.

Mermaid’s skin is flatter and currently, is not scaling.

I would have to deem this trial a huge success!

As a loyal customer we paid $36.00 for this product ($60 retail) which seems to be on the higher end of most products we try, with the exception of the WartPEEL ($80) but it lasts. I too, used the product all 4 times Mermaid did on a patch of eczema (wish I took pictures) and we have well over 3/4 of a bottle left. If your weighing out the cost, I expect this product to easily last us 3 months for 2 people.

I will move this trial to our permanent page so you can easily locate it if looking for something to try.

Product Highlights

  • The Exfoliating Peel uses microbeads to quicken the process of skin turn over. By rubbing these microbeads on the skin you’re helping to exfoliate and rid the body of old skin cells, allowing the new skin cells to surface faster than they would naturally.
  • These microbeads are encapsulated with aloe, a super healing nutrient for the skin. The process of exfoliation can sometimes cause irritation, but the presence of aloe helps to avoid that. Aloe is a natural anti-inflammatory. As the microbeads are rubbed around, aloe is released to sooth, calm, and hydrate the skin.
  • There are NO HARSH CHEMICALS! The contents of the Exfoliating Peel are derived from fruit and are botanically based active ingredients.
  • The peel takes it all off revealing healthier skin and a more natural healthier you!

If you are interested in purchasing or just looking at any It Works products feel free to contact either friend of mine who will guide you through the uses and any information you could ever imagine wanting.

April Backwell

503-314-9348

Backwellfamily@gmail.com

or visit her website at:

http://www.aprilbackwell.itworks.com

or

Alicia Richardson

503-957-7126

Lishadawnn@gmail.com

or visit her website at:

http://www.dreamingwithalicia.myitworks.com

Thanks for walking with us today,

Mermaid’s Mommy