Archive | March 2016

Are Mermaid’s real?

Only 5 days until our 1st Birthday and our week reminiscing about the past year together continues. Tonight we are going whimsical and sharing one of our all time favorite posts, A Fish Tale.

That was such a fun experience and definitely humbled us. Never saw it? Read it, but don’t remember? New to us? Take a peek!

https://mommysmermaid.com/2015/10/05/a-fish-tale/

To see more work by Kinna Clark go to:

http://www.geminiIImages.com

Thanks for walking with us today,

(and those of you in the PNW, enjoy that sunshine!)

Mermaid’s Mommy

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Epidermo what???

As we continue to close the gap on our one year anniversary I share another gem from our first few months. If you have yet to read it, this is the article after we got the results from Mermaid’s biopsy, what a happy day this was. To have answers and be cleared of cancer was so joyous, enjoy!

https://mommysmermaid.com/2015/09/27/prognosis-happiness/

Thanks for walking with us today!

Mermaid’s Mommy

Looking back…

We are slowly creeping on a year up and running at Mommy’s Mermaid, next month we will celebrate our Birthday. Over the next week I will share some of our favorite stories and moments as a reminder of what we have covered and experienced. We are gaining new eyes daily and it’s a lot to sift through so I will help to highlight some of the pretty amazing stuff we have encountered.

Here is our first reminder… That time a random lady ruined our day.

https://mommysmermaid.com/2015/07/16/car-candy-for-breakfast/

Thanks for walking with us today!

Mermaid’s Mommy

This entry was posted on March 26, 2016. 1 Comment

Twinkle, Twinkle

In my kitchen window sits a dried out yellow rose. When I see it, I think of the song Twinkle, Twinkle.  When I think of Twinkle, Twinkle, I feel brave and scared and confused and happy all at once. So what power does this dried out yellow rose hold that it can make me feel so many different things?

When Mermaid was little she didn’t sleep well. We would have to rock her for hours upon hours. I use to pace the house singing Twinkle, Twinkle. I can recall so many nights in her room just swaying and singing, the window in her room sits at just the right spot to bring in a smidge of the moonlight that would glow as we sang. When she had her biopsy I held her down and sang Twinkle, Twinkle. She still occasionally asks for it, only now, she can sing it with me, and it’s the sweetest thing you’ve ever heard.

An old friend of mine is currently in jail after being accused of a pretty horrific crime. The details are not important at this point in time, maybe another day down the road when the trial is complete she will choose to tell her story, until then, the details hold no weight in my purpose of this connection. She has a school-age daughter and through our entire friendship I always respected what a good Mother she was. She was so fun, full of life and always talking about her little angel. In recent years she had another child and despite our distance, I can only imagine she was an equally amazing Mother to them as well.

When I originally saw the newscast of her being arrested I was in shock, I went to our old group of friends looking for their reactions and almost felt numb. She was released for a short time in which I got to touch base with her but then she was re-arrested and has been incarcerated ever since. The person I knew, in no way, shape or form, had the ability to commit this crime. People all around me were telling me that “people break” they ” do things we would never expect”, one person told me she wouldn’t be there “If they didn’t have the evidence to prove it.” Yet I have still NEVER been convinced. Her first hearing was coming up and I asked multiple people to join me, I needed to see her face to face. I felt like it would give me a better feeling of what happened. In the end nobody came and I went alone. I don’t know what I was hoping for, I knew it was just a hearing with basic information, I expected it to last 10 minutes, I assumed there would be others on the docket, a room full of people where I would have simply blended in and I would have arranged my whole morning off to leave just as confused.

As I entered the court room I stalled. The entire thing was empty. Just then a lawyer walked in and asked me if I was there for that specific case, I said yes, and he assured me I was in the right place, then he left the room. 15 minutes until start time, nobody there. 10 minutes until start time, nobody there. I text a mutual friend explaining how odd the whole experience was, 5 minutes until start time… I hear someone behind a closed door state that she has arrived. I got butterflies, my palms were sweating, Why was I the ONLY person in this room? There she was, walked in by an officer, placed in a chair in shackles, just her, an officer and I. She had no idea I was coming, how could she, we had not had any contact since the night she was arrested for a second time. She looked beautiful, as usual. How she managed to pull off looking like she had make-up on is beside me, but she did. She whispered to me “Thank you for coming” asked about my Mermaid and told me she loved me.

As her lawyer entered the room and we were now passed starting time they spoke so quietly to one another I couldn’t hear what was happening. I then saw her lawyer pull out 2 round white buttons, a button I recognized. It was the voice box for a build-a-bear. She had two of them. In a silent court room, much like Mermaid’s room all those nights I walked and swayed singing Twinkle, Twinkle – she began to sing into them. One “You are my sunshine” and the other… you guessed it, “Twinkle, Twinkle.” I cant even begin to tell you the level emotion that took over. I sat there crying, watching this fellow Mother, friend, human being, sing her children lullabies into voice boxes so they wouldn’t forget her.

Court began. She was confident, brave and it was over. Until the real deal a few months away that is. As it ended her family showed up. They had been misinformed of the time and missed the entire thing. They arrived with enough time to sit down and be asked to leave. The lawyers finished up a few conversations and I waited in the hallway with the family. They shared positive information with me and her Mom asked that I stick around a few minutes for a picture outside.

Outside of the courthouse we were all given a yellow rose. We took a picture holding it and her Mom intended to send it to her to show her our support. I thanked her Mom, hugged her, and left.

When I made it to my car to leave I couldn’t go directly to work, I was on the verge of losing it, I was holding in so much. Instead, I drove to a nearby park on the river, put my car in park, the rose on my dash, and sobbed. So many lives have been effected by this terrible tragedy, two children are without their Mother, while my friend’s Mother watches her own babies life unfold, helpless, just clinging to hope. The echoes of her voice singing into the voice boxes ran through my head over and over. I cried until I had nothing left. I fixed myself up, and left. Nobody at work would know what my morning had been like. None of the patients would even begin to guess the despair I was feeling only an hour ago. The people I returned emails too would think it was a normal day, but it wasn’t.

I believe everything happens for a reason. We may not know the reasoning behind my friend’s story just yet, but I believe I was meant to be in that room, alone, with my friend, while she sang to her babies. I believe I was meant to have those few small moments to see and know that the person I knew, was still the person I knew. Call it what you will, I felt in that moment, as she sang so peacefully that my soul knew she would one day walk free.

That night I held Mermaid a little tighter, and sang her Twinkle,Twinkle.

The rose sits in my kitchen in the same vase I placed it in that day so long ago. It is dried perfectly and reminds me daily of someone else’s struggles.

Mermaid’s disease is harder on me than it is on her at this point in our lives. Our journey right now is about learning to cope with what life has given us. Throughout our path I have felt sad, anxious and nervous. Some of that I have overcome, some of that, I haven’t, but much like my friend, I have no idea what our future holds at this point in time. What I do know, is that something inside me, something strong, tells me that we are all going to be just fine. I think about my friend’s little girl pushing that bears hand and it singing to her, offering her comfort, just as it does for my Mermaid when I sing it to her. Our struggles, be them big, or small, lead us to find little rays of sunshine, small glimmers of hope that give us peace in merky waters. I believe Mermaid and I are on the path we were destined to be on, that she was given her disease to rise above and prove that being unique makes you shine.

Twinkle: shine with a gleam that varies repeatedly between bright and faint.

To my friend, may you ever see this, and all our fellow nevus owners, continue to twinkle.

Thanks for walking with us today,

Mermaid’s Mommy.

 

 

 

You were born to stand out!

There was a time in my life I took a “break” from social media. I personally no longer saw the need to read about other people’s every move or share mine. I was in contact with and saw the people I wanted to or used other means, like e-mail, text, this weird thing known as a “phone call” and believe it or not, I was then – and am still today – a fan of snail mail. I get really excited when a friend or some of my family from the older generation sends us a surprise. I felt satisfied with my “social contact”. However, after Mermaid was born the need to show pictures and events quicker, with those we didn’t see on a regular basis, led my husband and I to rejoin the Facebook frenzy on a joint account. I realized when I returned not only how much I missed seeing what was happening in everyone’s lives but being able to share in their joy.

Further down the road, after Mermaid’s diagnosis, my enjoyment of being back on Facebook turned into a necessity. It’s the place I found our support groups and began building relationships with fellow Nevus owners. Since deciding to start Mommy’s Mermaid social media has served as the place I identify who’s stories to share and has guided my family in many situations where we felt confused or nervous.

In staying with my commitment to help bring awareness and understanding to this disease I am always fulfilled to see others taking the opportunity to do the same on many different platforms. It’s such a brave act to share your personal story of being “different” or ask for help in times of need from complete strangers who may or may not comprehend the place you are in. Openly talking about what makes Nevus owners unique and special also runs the risk of putting yourself in a very vulnerable place with the public. To nobody’s surprise, I’m sure, there are still negative reactions to the way a Nevus owner may look and a lack of compassion for the way they feel, both inside and out.

 I was beyond excited to recently see one of our fellow Nevus owner’s take a huge leap and get featured in their local newspaper. The Manser family from Townsville, Australia shared their story about their daughter named Hope through a feature article in the Townsville Bulletin.

My favorite line in the story is when Mom, Karyn said:

“Hope was born to stand out” 

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I could not agree more, to all you special nevus owners, you WERE born to stand out, and to show the world that being unique is ok.

Below is the link to their story and I hope you take a few minutes to not only read, but really absorb their message, their fears of their daughter being bullied and their decisions to approach life teaching her how to have the resilience and self-esteem to deal with said bullies.

http://www.townsvillebulletin.com.au/news/baby-girl-born-with-giant-birthmark/news-story/554ee934c9c40ae58069cc76f21ad72e

I applaud both the Manser family and the Townsville Bulletin for shedding a small light on this beautiful little girl.

Thanks for walking with us today,

Mermaid’s Mommy

Every penny counts

This has no correlation to my typical subject matter but I am going to use this platform to bring more eyes and support to a family in need.

Tuesday March 1st, Kristi Oliver of Gresham Oregon, died from head and chest trauma after a 100-foot cedar tree fell on her car while driving. The tree smashed into the driver’s side of her SUV at 6:41 a.m

Another driver pulled over to try to help but Oliver was pronounced dead by the time an emergency crew arrived. It wasn’t immediately clear what caused the tree to fall, though recent storms in the rural area east of Portland may have been a factor.

The moss-covered 100-foot cedar tree snapped and crushed Oliver’s windshield and hood.

Kristi was only 30 years old and nearly 4 months pregnant with her 2nd child. She leaves behind a husband and 3-yearold son.

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To donate or offer condolences please visit their go fund me page at:

https://www.gofundme.com/b4s32hd8

Thanks for walking with us today,

Mermaid’s Mommy