I wish I had something exciting to write here but I don’t. I was born and raised in the pacific northwest and secretly hate the rain (shhhh), yes, I love my $4 coffee and I eat the greatest crustacean on this planet like an animal. Dungeness crab of course.
By day I work in Mental Health but by night I am a superhero of the Mom kind, and by that I mean… I clean, cook, clean, read stories, clean, bath time, clean… you get the jist.
I have a vested interest in Linear Epidermal Nevus because of my daughter but I hope to learn about all forms and be able to speak about them intelligently.
So proud of you Mommy Mermaid and this amazing blog you are starting for you, your beautiful daughter as well as anyone else who may want to read and take in. I have a friend who’s son had a Wilm’s tumor who I watched all she had to go through and overcome. This blog would have been a great place for her to vent, unwind or just know that others are out there with something like it or have for her to lean on! Xoxo my friend
Kara, I never knew this. I would love to pick your friend’s brain about how it presented and teatment. How they dealt with that, tell her to come visit! Thank you for the kind words and for visiting my page! Love you friend!
Hi, I’m 27 and have Nevus like your daughter only I got it on both sides of my body. I have a line down my stomach and have it mostly on my right side. Mine started when I was ten weeks old and started on my right armpit and spread but not on my face. I’ve only just started to look into what my birthmark is as I’ve just always accepted it and got on with life. my mum said it didn’t effect me as a child and people stared but children don’t see that but it would upset my mum. Well I’ve made it to 27 and it’s only made me stronger xx
Thank you for sharing your story, I know how personal it is and I appreciate it. Im glad you found us and hope you continue to follow us! You sound like a very strong soul!
I am so very proud of you Ria!
You are an amazing mama and now a blogger and educator- Super Mom 🙂
Keep it up and know you are supported!
Hey there! My son also has LEN and winter is brutal for him this year. How might I find you on FB to have support and be connected with others? I cried when I found your blog. It breaks my heart that our babies have to deal with this. But having a village that understands the struggle would be a godsend for me.
Hi Abbi! Im so glad you found me! I havent posted in a while but have a LOT to share so will get a new post up before years end. We DO need a village. People sympathize but dont really understand how we feel as Moms and all the small things that arise both ourselves and our littles have to endure. On FB its Maria N Jim Platt! Find me and then comment on my page so I know its you 😉
I happen to see your website because my daughter got very similar ilven like your daughter under the left armpit and on hand. My daughter developed further symptom when we did 9 year old health checkup for her. I hope your daughter all the best. Thank you for sharing your story. We are not alone.