Back to ground zero…

Well, sadly… we are losing our Primary Physician. Those of you that have been with us from the get go know that he has been the one constant in supporting Mermaid’s care. When we fought with dermatology to have the biopsy done because they said it would be too “traumatic”, he gladly did it for us and she was a champion. In fact, everytime we went to see him there on after, she said she would let him have another mermaid scale if he wanted. When Yale wanted the biopsy sent to them, he put it into action without hesitation. When we needed physician approval for the wart-PEEL, he signed off on it and backed my decision to trial it, knowing it may be a bit controversial – and to date, it has been the best treatment we have had.

Though our early days left him perplexed and we were sent to Dermatology, we never quite stuck with anyone and he became our safety net for all our needs. It seems kind of silly to recognize just how upset I am about it when there is a huge pool of perfectly educated Physician’s to choose from but when someone has been there from the beginning, it’s hard to let go.

Some of you know, others don’t, but after Mermaid I got moderately ill. Enough that after 2 years of treatment a decision was made that I had to have a hysterectomy. When the decision no longer feels like you own it because there are no other options, you crumble a little bit. Throughout that process he has definitely seen me at my worst. Within a matter of a few short years I rode quite the emotional roller coaster between Mermaid and myself and through it all, he was with us, helping in every way he could. For the care he has provided I will forever be grateful.

While we sift through a period of limbo searching for our next permanent physician we may turn to all of you more than normal for help and direction. Luckily, we have all of you! So, with that being said… were looking for some advice!

Mermaid’s hand seems to be progressing again. I don’t want to use the peel on the surface of her hand due to potential scarring and pain but not only has it cracked and bled it’s now thickening. Aside from “moisturizing”-  those of you that deal with the thickening aspect of it, what do you recommend and does anyone have experience with hand lesions specifically? It’s such a sensitive spot and I hate to cause any damage drawing additional attention.

Have any secrets you care to share?

Wish us luck!

Thanks for walking with us today!

Mermaid’s Mommy

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